Cycling for MND

By admin | on February 4th, 2015

Callum is an MND sufferer diagnosed 5 years ago who is raising money for MND Scotland. If you can help or make a donation please do what you can.

A bit from Callum: “My experience shows a lot more than you think can be done to help improve the lives of people with MND.  I’d like to share my experience in the hope of helping, and giving hope to others.  If you want to help too, donate via JustGiving or alternatively by JustTextGiving, texting CALC51 £5 to 70070.

So why Calum’s cycle? Funding shortages mean rehab equipment and physiotheraphy isn’t available in our area for patients with terminal conditions like MND, so I used my own savings to hire a rehab cycling machine and have been using it as part of my exercise regime since 1st December 2014.  I’m finding it transformational, hence the logic behind this effort, and will be updating my distance cycled weekly.

Going back a few years, I was diagnosed with MND in March 2010. As a 46 year old with three young children this was a devastating piece of news, particularly given the poor prognosis. However, I decided from the outset that I was not going to give in easily to this condition. I kept working for two years and we had lots of family holidays across the world.  I became wheelchair bound in March 2012 and seriously ill during the autumn of 2012. I appeared to be in the typical end of life spiral of MND and after a period in ICU in Edinburgh during November 2012, I was transferred to my local Hospice in early December 2012. By this time I was ventilated, had a feeding tube fitted and my prognosis at this point was not good – in fact I was not expected to live for more than six weeks.

At this point my Council and various parts of the NHS came together to ensure I was able to come home – to die. A comprehensive care package was quickly put into place and after spending what we all thought was my last Christmas in the hospice, I came home on 27th December 2012.  Amazingly, due to the combination of good care, equipment, and physiotherapy my condition improved and has since pretty much stabilised.  Now I have limited mobility but I am still able to talk normally and eat a good, albeit modified diet. I can use the computer via Eyegaze/Dragon Dictation equipment, which enables me to control my computer with my eyes and voice – this gives me full access to the internet and the ability to type. But there are many MND sufferers out there who through lack of resources have access to none of this – something that needs to change, and soon.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity

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Specialists in prescribing mobility aids.